What the heck is fibromyalgia?
The truth is, we know of it. We know it is about pain. We know it is chronic, there is no cure.
We do not know with certainty how it happens, what toll it will take on a person’s life, or why it varies from person to person.
How do we expect other people to understand fibromyalgia when we don’t really know ourselves? It’s a guessing game at this point. How do you explain something like Fibromyalgia Syndrome?
Let’s get down to basics when asked what is fibromyalgia, keep it simple…
No one gets in line to get a diagnosis. We receive it. It’s the gift that keeps on giving. We were never given a choice! Let’s at least work together to promote awareness and understanding of this syndrome.
Spot on! There may be no explanation for it yet but the pain is DEFINITELY real. Hopefully some day we will have concrete answers and explanations!
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I so agree! I really hope we get some concrete answers… I’d like to know the answer to my ultimate question, WHY? Thanks so much! 🙂
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That’s exactly where it gets so tricky as I do suspect the ‘why’ might be different for some than it is for others. It sure does seem that a period of high stress, antibiotic use, and/or past trauma is ‘some sort of a factor’ in almost all chronic or mystery illness, though — I for one have lots of ‘speculative theories’ regarding my own personal case — but until I find scientists willing to spend big money on research…it’s ‘crickets’. Gotta make our own noise I guess, and carry on best we can!
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You nailed it! Yes I suspect that there are definite traumas, illness, medication use, genes, even (yes!) STRESS that precede the onset of a chronic illness. Theories are abundant. Now for the money to test these theories… I think I hear crickets too! 😳
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I’ve given up asking why. I try to spend most of my time now on the “now what?” How is your packing coming? Have you made the RV purchase, or does that wait til after closing?
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Hi! We are ready to make the purchase but definitely waiting to make sure the closing happens! That’s a priority! Well, “now what” works too… we do learn to roll with the punches. And there are many! Thanks my friend! xo
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Maybe in time people will know more about it. You’re very brave to fight this fight and so are the millions others who are doing so.
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I sure hope there will be more research available soon. We have many theories, not many certanties! In time. Thanks, my friend! 🙂
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I hope so too. Take care.
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You are a total badass my dear!
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Wow! That is sooo cool! I’m a badass😎!?!? Yasss… thanks my friend! You Rock! 😂🤣😂
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You’re so good to speak out about it Kim. I have a friend who has it but she doesn’t like to talk about it. She mostly laughs it off. Maybe laughter is her mechanism for coping. Take care. xx
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Hi Miriam! We are not all comfortable talking about this illness! I wasn’t for years. But I speak (blog) about it now, hoping to reach even one person who wants to learn about fibro. Hoping to be of some help to others who have fibro. Laughter is always good medicine! 😊💜💫
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It sure is Kim. And yes, I understand everyone deals with it differently. 💙
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You are a good friend!
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syndrome
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Has MANY symptoms. Syndrome. Yes. 👍
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Have it 20 years, talking about only in the past year or two. It’s one of those misunderstood illnesses because of how it impacts people differently and has peaks and troughs.
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Well, 20 years… maybe one day we will say when I used to have fibro…!!! Thanks Marie!
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Wouldn’t that be fantastic Kim! X
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I really appreciate this because, honestly, I hadn’t a clue what it truly was. We don’t know but it hurts is a great answer. Scientifically? It’s a nerve disease. Something, somewhere, inside is sending mixed signals, the wrong signal, and pain is the result. That really sucks, sister. 😟
But, again, I appreciate the concise lesson. Some of us needed that to better understand!
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Awesome, Tom. I so appreciate your take on my simplistic ‘definition.’ There is, of course, so much to fibro. But this is a start! 😊
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