I planned on doing Fibromyalgia Awareness posts all this month, every Wednesday. It was a sound plan. Then my parent’s neighbor died, she was very ill. This was expected but when it happened it was still sad. About two days later… my uncle died. He, too, was very ill. In fact, he was in hospice care, his kidneys were shutting down and he opted not to receive treatment. He passed very quickly after that.
I had been planning to take a week and spend it at our family lake home. It was all planned. My health had been questionable for some time and I was hoping a change of pace would help me over the last hurdle. However, two funerals in one week were not planned.
How was I going to get through these funerals?
Would I get through these funerals?
How was I going to be of any use to my parents, who are elderly, during this week?
Would I be able to follow through or fail again on my plans?
When you have fibromyalgia you don’t get better. You never get better. Fibromyalgia is a chronic syndrome. We say illness or disease but it really is neither. Fibromyalgia is a syndrome because it has many contributing coexisting conditions. These coexisting conditions tend to be progressive, worsening over time. But fibromyalgia itself is not a progressive ‘illness.’ (I am not the ‘syndrome’ word police!) This progression of symptoms is very confusing to those of us with fibromyalgia. For the rest of you, it must seem like a damn soap opera!
[Scene: Betty and Jan are talking about their friend Laurie; camera pans to Betty.]
Betty: Then Laurie said she had Fibromyalgia Syndrome and Chronic Fatigue Syndrome. But now she calls the Chronic Fatigue Syndrome some weird word; mya-lgic- encepha-something?
Jan: Myalgic Encephalomyelitis.
Betty: Which is it!?!? And what does THAT word even mean? I swear she made that up! AND Laurie says she has depression, migraines, restless legs syndrome, and [whispering] bathroom problems … how can one person have that much wrong with them?
Jan: I know! Like, go get it fixed already!
Betty: At least pick one thing. Jeeze!
[Betty and Jan roll their eyes and sigh, end scene.]
The truth is, WE DO have that much wrong with us and many times much more! Take a peek at this sweet little list of possible coexisting conditions!
So, how did I handle my week at our family lake home? I attended everything that was planned. I rested when I could for as long as I could. I wore my therapy belt and snacked on protein-rich foods. I did my fibro exercises. Basically, I went ‘old school.’ I treated my body just as I had right after I was diagnosed with Fibromyalgia. I was very aware of every ounce of energy I spent and was meticulous with my medication. I called my husband frequently. I continued to check in with my tribe for support and received it with a grateful heart. I made sure I was mindful every day of the beauty around me …
I made it!
Live your best life!