Do you suffer from a chronic pain disease? Is there no cure? Then you should fill out the Chronic Pain Disease and Palliative Care Certification Form.
A while back I wrote about a trip I had taken to the Emergency Room. I was diagnosed with pneumonia and admitted to the hospital to receive IV antibiotics. I was treated with those antibiotics and Tylenol. My chronic pain was not addressed. I was in agony, not from pneumonia but from the chronic pain of fibromyalgia.
I was medicated in the emergency room for chest pain. Once I was moved into a hospital bed, there would be no further medication for the pain I was experiencing. My fibromyalgia went into a full flare due to a voluntary test I allowed them to run on me as a ‘teaching’ protocol.
Four doctors arrived in my room and asked to administer an ultrasound on my back to get pictures of my lungs. I agreed to let them do the ultrasound because I believed it would be a less invasive test and other patients may benefit from it. Bad decision. After allowing four doctors to deeply press the ultrasound device all over my back, the myofascia bruised and pain signals were activated throughout my body causing a very painful flare.
I told the admitting doctor that I would need to be treated for my chronic pain. I still didn’t realize the ultrasound had caused the flare at this point, all I knew was I was in a LOT of pain. She denied my request for pain medication, she refused to contact my primary doctor, and she stated I’d need to see a pain doctor on site. This pain doctor had left for the day and wouldn’t be returning until the next day after 5PM. It was 11AM…
The next 30 hours were unbearable… I still cannot talk about what I went through, and I cannot repeat the names I was called. It was terrifying and traumatic.
Never again. I will not ever let this happened again.
I found the Palliative Care Forms I was searching for! A man named Dr. Kline does so much for the chronic pain community. It was after listening to him I learned “Palliative Care,” and “Hospice” are two separate entities. Usually, when we think of hospice, we think of palliative care plans, but this need not be the case. Chronic pain patients are entitled to pain management. We are not drug seeking lunatics. We are not part of the so-called ‘opioid crisis!’ We are people who have an unusually high tolerance for pain medication because we are continually releasing pain-relieving substances our bodies naturally contain because our brain is merely responding to continually firing pain receptors.
Download and print out your Chronic Pain Disease and Palliative Care Certification Form. Your doctor, nurse practitioner, even your nurse can fill this form out, and you can keep a copy with you at all times!
I want to know how these forms work for you! If you have one of these already in place, please let me know if it has been useful! We may have more work to do, but this could be a step in the right direction!