Engage.

I made soup! I made soup. Cabbage roll soup. It is delicious and freezes up in smaller portions very well … the point is, I am trying to re-engage in life. Healing from pneumonia that I have takes weeks, sometimes months. This virus has caused my fibromyalgia to flare with a vengeance. The fatigue itself is overwhelming. But there is more to this then just healing from pneumonia, I need to recover mentally from the treatment I received while I was hospitalized.

I entered the Emergency Room on Sunday the 16th of September. (I have been a patient in this hospital over a dozen times; in-patient, I was not really worried as I believed I would receive adequate care.) I was having chest pains and a hard time breathing. I was instantly taken to a room with a crash cart! There were 4 to 6 nurses and technicians with me at once! My clothes were removed, a monitor was hooked up to my heart while an IV was started and blood was taken. The doctor appeared immediately. Morphine was given, and baby aspirin was given to me to chew. I was put on oxygen and wheeled into a different room for an MRI and brought back to my emergency room and given Fentanyl. More blood was taken, and my vitals were beginning to return to normal, but my fever remained very high. I had pneumonia. A nasty case according to the emergency room doctor who said he would be admitting me into the hospital…

Everything went wrong once I was moved to a hospital room. Everything. I was released three days later. It was so traumatizing I cannot write about it to this day… to heal, mentally and physically, I need to put my memories about this hospital stay in a box and close the lid for now. I did send in a survey that was sent to me from the hospital. I filled it out truthfully, painfully, as the nightmares have still not ceased.

In time, I will write my story when my body heals, and my mind can deal with what I went through, this is not that time. 

I have received stories from women with all sorts of chronic illnesses, reading about their very own hospital horror stories. They are brave and strong and wrote about their experience. They had the guts to send their stories to me. I am disgusted and angry at the horrific treatment they suffered through.

What do I do now? 

How do I handle this information?

I want to make sure these horrors never happen to anyone again… I want these women to have their stories heard! I also need to work on a solution. I need to figure out how to ensure patients are listened to and their “rights” to a pain-free hospital stay are upheld! I have been going over story after story… what would make a difference?

I think I have an idea…

The introduction of Palliative Care Medicine Plans for all chronically ill patients:

Screen Shot 2018-09-30 at 11.26.34 AM

This is my new project. My goal will be to provide access to these type of care plans for those who need them. I will not stop until I have these types of informational packets ready for anyone who needs one. This will take some time, but it will become a reality.

 

~Kim

40 comments

  1. Kim~

    First, I’m amazed at the way you have taken something bad and found a way to make it positive. It’s very you to do so but that you’re already doing it while you’re still healing is profound.

    Second, soup sounds so yummy! 😘

    Liked by 2 people

  2. Oh, I am so sorry you caught that terrible pneumonia that’s going around! I’ve had at least three people I know end up in the hospital because of it. I hope you are on the mend.

    I am also sorry you had a terrible time while at the hospital! *Gentle hugs* My mother had a terrible experience earlier this year with a hospital. I wish these were rare experiences, but they aren’t. I love your project, if you need any help, let me know!

    Liked by 1 person

  3. I’m sorry you had a terrible experience this last time in the hospital. I have Fibromyalgia as well and have had pneumonia twice. I do hope you are on the mend now, feeling better, and happy to be home. You are on a good path and I will be reading those stories from other women.

    You were badly traumatized; you may want to consider suing. I’m not one who jumps to that quickly, but what you are describing is some PTSD from your bad experience. That is unacceptable. Please, if you are not already in counseling, please be sure to seek out some help. Thinking of you, and wishing you better times.

    Chanah Liora

    Liked by 2 people

    1. Thank you for your thoughts on this. I definitely agree there is a touch of PTSD that has developed from this. FEAR, for sure. These “issues” however need to be solved for a number of people who are being treated by an inept system of … medical policy?!?!? I am the kick down the door until you talk to me type… and I will get answers. Much appreciated Chanah! ~Kim

      Liked by 1 person

  4. Kim, I am very sorry you experienced so much trauma in a hospital, of all places…….it makes me sick to my stomach as I spent years of my life working in those very same places. God bless you for turning your tragedy into something that will benefit so many people. Sending you healing thoughts and prayers…………

    Liked by 2 people

    1. I think even if you are trying to do a good job for your patient, you get overworked and eventually stop trying to fight a losing battle. I don’t think (or hope not) that anyone in the medical field goes into work thinking how can I mess with my patients today? The very basics… the ultimate rule of any one practicing medicine is do no harm. I’ve read too many stories about harm being inflicted on patients. I want to hear both sides. I want to know why a job in medicine has changed so much that you forget you are dealing with very vulnerable sick people. I think I have a right to get some answers… Things are very different from what I remember even 5 years ago. It is sad.

      Liked by 2 people

      1. Although I was never a nurse I did direct patient care and I did witness others who truly did not care about their jobs due to so many reasons. It broke my heart as I have been on the other side and knew how terrible it was to be the person in the bed. I worked so very hard to do all I could for others but there were times when no matter how hard I, or other dedicated employees worked, the doctors always, ALWAYS, have the final say. I am so very sorry that you had such poor care……..it is so wrong.

        Liked by 2 people

  5. So glad to see you back here love! And making such progress with what sounds like a horrific experience and multiple illnesses. You are such a true warrior and inspire me to look further than my own circumstances. Your project sounds like it may make a profound difference in the treatment planning and care people with chronic illness recieve. What a wonderful gift that would be! I also am offering any assistance you may need in the completion of that endeavor. You rock lady!!! Just wish you weren’t so far away so we could share some of that soup.
    Be well my friend and take it SLOW AND EASY.
    Much love ~ Tamara

    Liked by 1 person

    1. Thank you Tamara! I am planning on making this care directive easy and accessible for all. It will take time, but I won’t quit until I finish. One day we will share some soup! Thanks for your offer to help, you never know when I may call. 😊

      Like

  6. That is a wonderful idea, Kim. It’s awful that things went so awfully for you in hospital, which is the last thing you need when so unwell. These things can be incredibly traumatic. I’ve had very negative experiences in hospital with the treatment from staff, nurses, specialists etc, on wards and in recovery from surgeries. I know others will have experienced worse but any negative experience is one too many. Keep what happened in the box for now and focus on healing, then deal with it and maybe write about it when the time comes that you can. Sending hugs xxxx

    Liked by 2 people

  7. It will be interesting to see if you get a call back from the Press-Gainey survey you completed. If you really want to get their attention, write a letter to the editor of the nearest large newspaper.

    I’m not surprised you are trying to make something good from a bad situation. I wish you success

    Liked by 2 people

    1. The news paper! Damn, great idea!!!! As soon as I have a solution, I will be presenting the problem to every paper and media channel I can reach! I will sing like a canary! I just think I need the solution or atleaset a viable option to correct the problem to present along with my complaint. Thanks, Steve!!!

      Liked by 1 person

      1. You might also want to send a letter to the hospital’s Chief Operating Officer and see if you get a response. If clinicians or nurses were involved send it to the medical chief of staff and the VP of nursing. Hell, copy the CEO while you’re at it

        Liked by 1 person

  8. I am so impressed that this tragedy has given you such an incredible idea and a renewed sense of purpose.
    You have always wanted to use your experiences to help others and this is the perfect answer.
    You are now armed with not only your trauma, but also the trauma of so many other women.
    Thank you for being caring and being so brave.

    You’ve been through hell before and this past month has been another stroll through it, I’m so sorry you had to go though this horror. you are an amazing woman, Kim.
    I’m honored to call you friend.

    Liked by 1 person

      1. Well I’m so glad you understood that I was saying you strolled through Hell, since I actually typed “here”….auto-correct is wonderful isn’t it?
        If I can help you in any way I’ll try my darnedest to get it done. xoxo

        Liked by 1 person

    1. Yep. They do get it wrong! I am trying to be proactive and did fill out some paperwork for them concerning my hospital stay. I find it still VERY difficult to express what happened to me. Maybe writing a blog about it will heal that ‘expereience’. I can’t seem to climb up out of this bought with pneumonia – once I have I think I will seriously consider looking at why it made me so vulnerable and felt so tramatized over this last particular hospitalization. Thanks Brigid!

      Liked by 1 person

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