I made soup! I made soup. Cabbage roll soup. It is delicious and freezes up in smaller portions very well … the point is, I am trying to re-engage in life. Healing from pneumonia that I have takes weeks, sometimes months. This virus has caused my fibromyalgia to flare with a vengeance. The fatigue itself is overwhelming. But there is more to this then just healing from pneumonia, I need to recover mentally from the treatment I received while I was hospitalized.
I entered the Emergency Room on Sunday the 16th of September. (I have been a patient in this hospital over a dozen times; in-patient, I was not really worried as I believed I would receive adequate care.) I was having chest pains and a hard time breathing. I was instantly taken to a room with a crash cart! There were 4 to 6 nurses and technicians with me at once! My clothes were removed, a monitor was hooked up to my heart while an IV was started and blood was taken. The doctor appeared immediately. Morphine was given, and baby aspirin was given to me to chew. I was put on oxygen and wheeled into a different room for an MRI and brought back to my emergency room and given Fentanyl. More blood was taken, and my vitals were beginning to return to normal, but my fever remained very high. I had pneumonia. A nasty case according to the emergency room doctor who said he would be admitting me into the hospital…
Everything went wrong once I was moved to a hospital room. Everything. I was released three days later. It was so traumatizing I cannot write about it to this day… to heal, mentally and physically, I need to put my memories about this hospital stay in a box and close the lid for now. I did send in a survey that was sent to me from the hospital. I filled it out truthfully, painfully, as the nightmares have still not ceased.
In time, I will write my story when my body heals, and my mind can deal with what I went through, this is not that time.
I have received stories from women with all sorts of chronic illnesses, reading about their very own hospital horror stories. They are brave and strong and wrote about their experience. They had the guts to send their stories to me. I am disgusted and angry at the horrific treatment they suffered through.
What do I do now?
How do I handle this information?
I want to make sure these horrors never happen to anyone again… I want these women to have their stories heard! I also need to work on a solution. I need to figure out how to ensure patients are listened to and their “rights” to a pain-free hospital stay are upheld! I have been going over story after story… what would make a difference?
I think I have an idea…
The introduction of Palliative Care Medicine Plans for all chronically ill patients:
This is my new project. My goal will be to provide access to these type of care plans for those who need them. I will not stop until I have these types of informational packets ready for anyone who needs one. This will take some time, but it will become a reality.