With fibromyalgia, as well as other chronic pain diseases, the brain is constantly firing pain signals. Our brain receptors are consistently attempting to keep up! Brain scans have revealed that those with fibromyalgia, are not producing enough of the organic chemical; dopamine. This low-level restricts our ability to maintain a sense of well-being. Remember the fight or flight model includes ‘freeze’.
Human beings, as well as most mammals, are virtually programmed to avoid pain. When we experience pain; physically or emotionally, we instantly react to the fight, flight or freeze mentality. Pain, or the perceived threat of pain, requires action! This perception triggers us to react. (Even unknowingly.) Put your hand too close to a hot burner on the stove, you react! You go on a hike, there is movement in the grass to your left, you freeze! These responses have been helpful from an evolutionary standpoint. These reactions can be extremely useful when directed at an appropriate situation.
When chronic pain exists, the fight, flight or freeze response also becomes chronic. This chronic response causes undue stress to your body accompanying the ever-present hyper-awareness that this state brings with it. Worse still, these responses become programmed and automatic. This means that you can be stuck in this survival mode for days, weeks, months or years at a time. (We commonly refer to this as a fibro flare.)
Our human bodies are just not designed to function chronically, in this response mode. This causes our inability to function at certain times. Chronically ill pain patients are already in pain! We experience fatigue and emotional disturbances due to the sheer fact our brains are busy with this nervous system response that we find hard to control. Being a chronically ill individual causes a reaction response to a threat that is sometimes not there and possibly overreacts to situations that are painful. Think of this as an example, you have a sunburn, you are hurting, and you see someone reaching to touch your shoulder, you react! Now same scenario but you don’t see the person, you only feel the touch … ouch, now how much are you going to react? The bigger the reaction, the more pain you create on your body that is already damaged by your illnesses.
The good news is … we can choose, at least some of the time, how to react if we are aware of our triggers and/or lack of triggers. We go back to living mindfully. We cut down our stress and practice meditation, preventative cognitive thinking, and/or other calming activities we have found work for us as individuals. What works for one, may not work for another! So it is imperative you find what works to calm you, relax you, and try not to set yourself up for stressful events.
What do you do to calm down your stress responses?
~Kim
Fight or flight is definitely exhausting…. I have not heard of the freeze part..going to have to check that out. I don’t have any good ideas to calm down the stress part, since my “handling of life right now” is more in a state of numbness…sorry
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Oh Grace! I know it is. If I’m not mistaken, that may be part of the freeze response. Hyper protection mode right now. I think if you felt anything other than exhausted and numb right now I’d be surprised. Just let yourself be and don’t ‘try’ to feel anyway that your not. Thinking of you. 💜💜💜
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The things I’ve found most helpful for calming down my stress response are deep breathing and using a positive affirmation “mantra” that I say out loud when I feel that ‘cortisol dump’ creeping up on me. They don’t always keep me from getting stressed, but they do help me calm down some once the stress response has started.
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Having a mantra to calm yourself. I like that! Along with the breathing. I have to remember to breath! And I’m looking for a new mantra… a favorite something that I can revert to… I’ve ordered a few books and a new journal. Time for some self-care!
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being chronically ill makes our bodies work so darn hard just to get through the day. i am so sorry you live with this too.
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We are absolutely exhausted by this disease! Our bodies are always struggling to read these response systems. Take care, Wendi and thank you so much for coming to visit me! ~Kim
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it is truly my pleasure………may you find many reasons to smile today!
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Thank you Wendi! Feel free to leave a link to your blog here! I enjoy reading it!
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Kim, you are so very, very kind and I am humbled by this offer. Thank you so much!
https://simplychronicallyill.com/
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You are so welcome!
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thank you again!
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pain is tough
love ya
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xo
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no lower back pain today yeah!
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Nice!
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I fortunately don’t have to deal with a lot of this, but I suspect the clock is ticking on that one
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I honestly hope that clock is NOT ticking for you, Steve!
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Our furbababies, music and drawing help me to focus on other things.
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All good things, thank you!
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You did an excellent job at explaining how this circle of pain works! I have lived with this hyper response since I was very young. I never knew how to deal with it, so I took pills that masked the issues. No one had diagnosed me. I didn’t know any better until I worked with a psychologist. I am learning new things to keep in my toolbox, but it is very hard work; exhausting work. And it is not easy to be consistent. Understanding the physical response helps me to make these changes like learning to slow my breathing, listening to music or writing to release emotions when I feel it creeping up on me.
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Hello! I hate that you had to deal with real pain at such a young age! Finally, a diagnosis! Good to hear you have a toolbox and have coping skills in place! Thank you for sharing!
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Pain has just become part of my every day life. I think the pain wants to be friends, but I really do not need a friend like that!! I do realize that stress increases my pain levels drastically and I am really bad at getting stress out of my life, but I am trying every day!!! Fantastic post as always!!!
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Thank you, Alyssa! Pain is definitely a frequent guest. With realizing ‘Mr. Pain’ will stop by at will, HIS will, we learn to accommodate pain and reduce our stress… though we never make friends with this unwanted visitor. And as much as we try, the stress our body feels (because of Mr. Pain) will continue to carry a bit of chronic stress… this we learn to deal with but it is not for us to battle, perse, we have a war to win! ~Kim
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Well said Kim! Mr. Pain is a very unwelcome guest and very uninvited into our lives. My word with friends like Mr. Pain, who needs enemies? Reducing stress will definitely help the pain issues, but stress seems to be a constant in life. I am doing my best to reduce stress, mostly by reducing the negativity in my life. We definitely have a war to win, but we are amazing and can do it!!!!
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I do what I can to plan and avoid situations that I know will cause me issues. I experience anxiety as well so I carefully control my environment.
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Yes, I keep most things/people Out of my sanctuary … stress is just everywhere!
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Awesome post Kim. After getting hurt at work over two years ago, my Fibro has been in a more or less constant state of flare or “freeze”. Some of this is due to the life changes that have come along with not being able to work anymore, multiple surgeries, moving out of my home and relationship issues fueled by financial stressors among other adjustments. So I am gaining a better understanding of that trauma in my life but still haven’t recovered enough to utilize some of my old tools that worked well before the Fibro Forrest Fire that has been my life these last two years. So one of the neatest things I created for myself was a cozy corner space in a front room that was just for my things. It contained things I loved to feel, touch, smell, hear, see, read, as well as do. It was made up of my favorite colors and textures and shapes, etc., – truly MY SANCTUARY. Where I went to when I needed absolute peace. This little corner of my house became on of my favorite places to spend time and just be in the world that is me. I haven’t been able or strong enough/well enough to recreate that yet for myself since I’ve moved, but I can tell you I miss it every day. I’ve found the MOST IMPORTANT KEY for me is that it brings me peace, a calming effect and that it incorporates everything I love on every level of my senses. I used to call it my cuddle corner. Hope I can get out of this freeze crap long enough to create that space for myself again. Really helped!!!
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That’s amazzzing! I so hope you can recreate your cuddle corner soon! That is just such a positive thing to have. I’m sorry you are in the “Fibro Forrest Fire” right now. May you find a path out! Thank you for sharing a very important tool, Tamara. You are in my thoughts. xo
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With FM I could mostly control my pain with diet and movement and cutting out stress. With CFS there’s pain all day every day. I have found ways to make it better but not to eliminate it. Music is incredibly helpful, calming, and healthy for me. Controlling how and where I sit also helps. I spend my days sitting in bed with three pillows behind me, not one, not two, and not four. Three specific pillows. If I do it any other way I have neck pain that is so excruciating that I want to crawl out of my skin. Stress makes everything worse, it’s crazy how reactive my response system is now. I used to be one of the most patient people I knew, now…eeks.
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I am finding the sitting thing to have become progressively worse. I can or cannot sit certain ways in certain chairs! I use 5 pillows, 4 bed pillows and one lumbar. I fight lower back pain always and recently started having new neck pain. I agree with stress! Control my surroundings. I need to read your info on your blog. I’ve been battling FMS and CFS for almost 21 years. I have never looked at them separately! Thank you. I have some homework to do! I’m so glad you commented! Please feel free to leave a link to your blog here. I’m popping over to your blog now.~Kim
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21 years, that’s such a huge part of your life. 🙁 I really think researchers are getting closer and closer…what a blessing it would be to be free from any of the pain! 🤞🙏 Everyone experiences the illnesses differently but for me they were clearly two different things. I’ve had body pain since youth so it’s hard to say if that was juvenile arthritis (my dx) or FM, but CFS hit me hard overnight and never left.
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So sorry, even as a child? I have the most respect for you. Mine came all at once, I was fine that morning and then I was ill that evening, pain, throwing up, everything so sore from the car accident… Fibro and chronic fatigue were my constant companions from that point out, in 1998. I believe they are ‘close’ to a cure… they now have the FM/a blood test. And doctors are starting to take things a bit more seriously. I don’t know if they will find the ‘correct’ cure for all of us in my lifetime but my goal is for the next generation. My great nieces and nephews I want safe!
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Gosh so many of us have a history of car accidents. It makes me wonder if it’s something to do with that terrible jolt and damage of our central nervous system. I was hit by a car at three. Someday we’ll have answers to these questions. But yes pain in my youth brought on by the same things that brought/bring FM pain in adulthood. CFS pain though, no match to the FM pain. And yes hoping they figure it all out for those who come after us.🤞🌸
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Indeed, thanks for sharing all of this. I so appreciate it!~Kim
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Hi Kim, nice to find your blog. I usually blog about my racing pigeons. Today I got around to starting a new blog portal and did one on Chronic Pain in its health section. I’m a qualified Veterinarian and have had CFS since 16 following very bad glandualr fever. So 41 years now. Kinda stuffs one’s life up to a certain extent however would say both the spiritual side and emotionally/mentally that I am a much better person for it! I have been off all pain meds for 5.5 years. I rest up a fair bit but I also make myself do stuff. We need to distract ourselves and create moments of joy and satisfation in our lives. Have a beautiful lifestyle block here in nz. Fergus.
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Hello Fergus! Thank you for sharing your thoughts. I will be checking out your blog and you are so right, “distraction” and “creating moments of joy” are so important! I love that you have “a beautiful lifestyle “!~Kim
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