May is Fibromyalgia Awareness Month, Really?

The National Fibromyalgia Awareness Day is May 12th but I am going to celebrate all month long! May really is Fibromyalgia Awareness Month. I often wonder if we are to be appeased by recognition? It doesn’t make me want to get out a banner and parade around like a beauty queen, “Hi, I am Mrs. Minnesota, and I have fibromyalgia!” (I’d like one of those damn big crowns though, that’d be cool!) I really don’t want my own month, my own day of awareness for my disease. I did not want nor ask for this disease.

Fibromyalgia was officially recognized in the International Classification of Disease Classification Manual on October 1, 2015. Fibromyalgia will be three years old this October. Before it was internationally recognized, many doctors did not believe in a fibromyalgia diagnosis. Fibromyalgia Syndrome was called the garbage can disease. I was nothing short of embarrassed when I received my official diagnosis in 2001 after three years of the initial onset.

Florence Nightingale was thought to have suffered from fibromyalgia for many years, in 1986, she became bedridden with it. At that time, Florence Nightingale was diagnosed with nothing more than a neurosis of a made-up illness with self-pity that manifested as a “Victorian melodrama.” Nightingale died in August 2015. Two months before fibromyalgia becoming recognized internationally as a real disease.

What is Fibromyalgia Syndrome and Fibromyalgia Fog?

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Live your best life!

 

IMG_0246~Kim