You have Fibromyalgia.

You have just been diagnosed with Fibromyalgia Syndrome. What do you do first? Go to the library, go to the bookstore, go to Amazon, get yourself armed with some books written by individuals WITH  Fibromyalgia. Learn about what it is that you have. You can join support groups but until you can define fibromyalgia, fibro flare, and fibro fog, you may as well join a group in Latin.

Just a caution flag about the internet. It can be a wonderful resource! But until you develop your own personal knowledge about fibromyalgia, you will have a hard time deciphering what sources are credible and what sources are not. I do wholeheartedly believe in support groups; on-line and in person,  just know your basic information first.

I encourage you to get the book Fibromyalgia and Chronic Myofascial Pain, A Survival Manual by Devin Starlanyl and Mary Ellen Copeland. Get it delivered to you via Amazon and make that a rush delivery! The book will be your life long companion. It is more of a textbook, go to the chapters that speak to you first. (Go to the ‘new and used’ option on Amazon and purchase a used copy in good condition.) I purchased my first edition in 2001 and it literally fell apart from use, I purchased a replacement about 5 years ago. This is a must have survival manual. It is my Fibro Bible! I still use the information in this book today.

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Learn your definitions! In the early stages of Fibromyalgia, you will need to know how to explain what you have to those around you who are attempting to support you. It is imperative that you can define fibromyalgia with a simple, clear definition, as well as fibro flare and fibro fog. Since fibromyalgia is a syndrome, this means it is made up of many symptoms. You will have MANY varying symptoms but learn the basics first … learn simple definitions so you may help others understand. You will need their support. When questioned about more detail, it is OK to say, “I do not know, I am still learning.”

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Fibroflare

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Learn these definitions, better yet, write them down and use your own words! Learn what fibromyalgia, fibro flare and fibro fog mean to you! This is just the tip of the iceberg. But it is a place to start.

You got this!

IMG_1744~Kim